Updated
Updated · AOL · Aug 16
Adams Brothers Raise Nearly $4 Million for FTD Research as They Face 99.9% Risk
Updated
Updated · AOL · Aug 16

Adams Brothers Raise Nearly $4 Million for FTD Research as They Face 99.9% Risk

1 articles · Updated · AOL · Aug 16

Summary

  • Nearly $4 million has been raised by Jordan and Cian Adams through their FTD Brothers foundation after the pair learned they each have a 99.9% chance of developing the rare dementia that killed their mother.
  • A 55-pound fridge carried through the London Marathon was their latest awareness stunt, following 33 marathons in 33 days and a run the length of the UK to draw attention to frontotemporal dementia, which has no cure.
  • The brothers, 31 and 26, expect symptoms could begin in their mid-40s based on family history; their mother Geraldine was diagnosed at 47 and died at 52.
  • Jordan tested positive for the mutation in 2018 and Cian in 2023, then turned the diagnosis into full-time advocacy through a foundation launched in 2025 and social accounts that now reach more than 1 million followers.
  • Their campaign reflects a broader push to fund research into frontotemporal dementia, a disease affecting personality, speech and mobility and believed to affect hundreds of thousands worldwide.

Insights

Could pushing the human body to extreme limits actually accelerate the incurable brain disease these brothers are desperately trying to cure?
Will the millions raised by these brothers unlock a cure for the genetic time bomb ticking inside their DNA before it detonates?
With absolute certainty of severe cognitive decline by mid-life, how does knowing your exact expiration date change how you live today?